Diagnosis

Fact sheets from the BSGE

Posted by on Apr 5, 2013 in Diagnosis, Expert | 1 comment

Fact sheets from the BSGE

Becoming an expert patient can be such an empowering way to manage endometriosis. The BSGE (British Society for Gynaecological Endoscopy) is the UK ‘s national body for professional gynae endoscopy practise, and has a great deal of clinical information and the latest research findings that as an endo patient you may find useful. The site contains links to the BSGE accredited centres nationwide, to enable you to find the best endo surgeon and specialist in your area. There are also many downloadable guideline PDF sheets for best practise in surgery and diagnosis. You may wish to arm...

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Back to basics: what is endometriosis?

Posted by on Jan 20, 2013 in Diagnosis, Featured, Pain, Symptoms, Uncategorized | 0 comments

  Endometriosis (pronounced end-oh-mee-tree-oh-sis) is a painful, chronic and sometimes debilitating gynaecological disease which affects millions of women worldwide. It occurs when tissue similar to that which lines the uterus (called endometrium) is found growing outside of the womb, usually in the pelvis (although it can be found anywhere in the body), and develops in to growths or lesions. Endometriosis is most commonly found on or around ovaries fallopian tubes lining of the pelvic cavity ligaments supporting the womb the area between the vagina and...

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The WombRoom

Posted by on Jan 8, 2013 in Coping, Diagnosis, Experience, Fertility, Support, Symptoms | 3 comments

The WombRoom is a wonderful resource to support young women dealing with reproductive health problems. Not just for endometriosis, the site is set up  to provide information and education services for young women under 30 who are affected by reproducitve health problems. The WombRoom provides educational workshops, inspirational talks and a wide range of online information for young women across the country. Founded as a result of a life changing experience of losing a right ovary and fallopian tube at just 19, the WombRoom has won business and innovation awards and seeks to reach out to...

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My wish for women living with Endometriosis: Poem

Posted by on Dec 13, 2012 in Coping, Diagnosis, Experience | 0 comments

My wish for women living with Endometriosis Is to make a plan despite the prognosis I have found true strength in my moments of weakness Life in return has offered me some sweetness! I turn up the volume of my favourite song “All by Myself”, but now I am strong! As I cradle my newborn and count my blessings Little fingers and toes that I am caressing When you think that you can’t have it all? Dream in colour then dream some more! Keep your heart open let this message in I’ve felt your pain too from morning to evening! When the pain cuts like a knife and is too much bear And you’re...

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My story: Loes Heiner-van Dalen

Posted by on Dec 11, 2012 in Coping, Diagnosis, Experience, Pain, Relationships | 0 comments

I am Louise Heiner-van Dalen, 63 years old. I live with my husband André in Elim, a little village in the east of The Netherlands. From the moment my periods started at age 15 I had a lot of cramps and stomach pain. I went to the practitioner, and he did some screenings of my blood and urine. Nothing was found. This was in 1964. The doctor told my mother that I was making it up to get attention. So my mother and my younger sister started telling me that they were strong and never complained, while I was weak and always had something to complain about. Every two weeks I had a lot of pain, and...

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Dr Oz explains endometriosis

Posted by on Dec 8, 2012 in Diagnosis, Featured, Symptoms | 0 comments

Dr Oz explains endometriosis

In this video, American TV doctor Dr Oz explains endo. It is amusing in the Jerry Springer format but take from it what you will, even a little smile. Watch the episode here.

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